Fred H. Cate

Protecting Privacy in Health Research: The Limits of Individual Choice

In his groundbreaking 1967 study, Privacy and Freedom, Alan Westin defined privacy as ―the claim of individuals, groups, or institutions to determine for themselves when, how, and to what extent information about them is communicated to others. Many data protection laws enacted since then have followed suit, relying on choice—often together with notice necessary to support choice—as the key tool for protecting privacy, or even as the goal of those laws.